Many times people have asked why I don't share my own personal journey and health issues. I guess they feel this would put a more "Human Side" on who is behind the Oneness through Art Movement and what drives me beyond my own challenges.
Being somewhat resistant to put myself out there on a more personal level, I have always felt this Movement is not about me, when in fact rather I like it or not, it is.
With a raw exposed feeling and a little acid stomach - here we go...
As a single parent of a very high needs 24/7 daughter, I understand intimately just what families and caregivers with special needs children endure day in and day out.
Florentina has numerous medical issues and special behavior needs that require my full attention to ensure her health, well being and happiness. In the process, over the years I lost track of my own well being and health. This past summer it all came to a head when I sorta collapsed in the backyard sending me to the ICU for 24 hour observation.
Just a month earlier I was diagnosed with Polycystic Kidney Disease with multiple hepatic cysts on my liver, cysts on my ovaries, cervical spinal stenosis(spine degeneration) and auto-immune/lymphocytic thyroditis. Which in a nut shell I have a life threatening chronic illness with complications of my body attacking and destroying my thyroid.
The left kidney pain which brought me to my knees today is what prompted me to write and share this post.
My biopsy came back inconclusive/negative as they mis-handled the samples; nice right? I don't know about you, but the last thing I want to do is have long needles jammed into my throat again. My thyroid is so swollen is hurts just sitting there. I was told "cancer usually doesn't hurt". Usually? In my heart I don't believe it's the Big C, that would be just too damn cruel of a joke, ya know?!
Long story short - when I collapsed it was from shear exhaustion amidst it all.
I am a very healthy eater, lots of green juicing, veggies, basically Vegan with occassional fish when my body is craving. I also exercise, do some yoga and Tai Chi and have a very positive happy go with the flow outlook on life overall.
But, I wasn't sleeping through the night, worried about money, worried about her future...Master Zhou said to me "stop worrying, you worry to much, you need to sleep." He was right, and I hear his words each day to keep me grounded in taking care of myself to ensure I am here for the long run for Florentina and to also continue to drive the Oneness through Art Movement.
I cannot explain it other than, this is something that I must do, am passionately driven to do. Yes, some would say I should go back to my "career", but I just cannot do it. For one thing, I don't have the energy to work a 60 hour week and raise my daughter.
Florentina is a gift and I wouldn't trade her for the world. Her autism, medical and behavior issues are not a gift, they are a crap shoot from hell, or Big Pharma. In my book those two entities are synonymous.
I often hear from others: "I couldn't do what you do" or "You are a saint" or "God only gives special kids to special parents". Um, NO!! I don't do any of this because I am a saint. I am far from a saint. I do it out of pure unconditional love for my daughter and frankly, it is the human thing, right?
To make things easier, we made a major move to Wilmington, NC recently to be closer to family supports - an amazingly friendly, community supportive and creative artsy town - we love it!
So, with a little luck, alot of prayer, optimism and my quirky sense of humor and artsy flair...this single mom will be better than ok. I will heal and thrive too. After-all, there really is no other option. And who knows, maybe I will meet "Mr. Right" in the process. :-)
Sending love and unconditional support to you all in your amazing journey's.
In Oneness,
- Andrea
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